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FAQs
Is membership free?
Yes. Membership in HVA is completely free. We are a volunteer-led nonprofit organization.
How do I join?
You can:
Email us directly at HealthyVolunteersAlliance@gmail.com.
Request to join our private Facebook group.
Membership approval is required to keep the group safe and secure.
Who can join HVA?
Any current or past healthy volunteer in clinical trials is welcome.
What if I’ve already had a bad experience at a clinic?
You’re not alone. Many members have faced unfair treatment, inconsistent pay, or discrimination. By joining HVA, your experience contributes to collective advocacy so no one has to face these situations alone.
Can I share my story or experience?
Yes! Member stories help us identify patterns and advocate for better treatment. You can share as much or as little as you feel comfortable with. Experiences may also be shared anonymously if preferred.
Does HVA provide legal advice or legal representation?
No. HVA is a nonprofit advocacy organization and does not provide legal advice or legal representation. Our goal is to support healthy volunteers through education, documentation, advocacy, transparency, and participant-focused outreach.
Can HVA help if I was removed or banned from a study?
While HVA cannot overturn clinic decisions or provide legal representation, participants may share their experiences with HVA confidentially or anonymously. By documenting these experiences, we can help identify recurring patterns, bring greater awareness to participant concerns, and in some cases advocate on behalf of healthy volunteers when appropriate.
Why was HVA created?
HVA was created in response to the lack of representation and support available specifically for healthy volunteers in clinical research. Many participants reported feeling there was no clear place to raise concerns, ask questions, or safely share experiences without fear of retaliation or exclusion from future studies.
Can participants contact HVA anonymously?
Yes. We understand many healthy volunteers have concerns about privacy, retaliation, or being identified when raising issues related to clinical research participation. Participants may contact HVA anonymously if they are more comfortable doing so.
Will my name or information ever be shared?
No. Membership is strictly private and confidential. Your name and details will never be disclosed publicly or to clinical trial facilities.
Is HVA against clinical trial facilities or researchers?
No. We are not lawsuit-driven and we do not attack facilities. Our focus is fairness, respect, and advocacy. We recognize that most issues arise from sponsor-driven study criteria, not clinic staff.
Why focus on healthy volunteers?
We focus on:
Arbitrary age exclusions in eligibility criteria.
Fair and consistent compensation.
Equal treatment regardless of race, gender, or background.
Protecting volunteers from retaliation, blacklisting, or bans.
Will joining affect my ability to participate in studies?
No. Membership is private and cannot be seen by clinics or sponsors. Our confidential group ensures you can share experiences safely without fear of being excluded from trials.
Although you must have a Facebook profile to join the confidential group, you may post anonymously once access has been granted.